--and also mediate grant funding for same, as well as act as clearinghouses for information about the condition and also do some patient advocacy.

The most prominent one now is the Foundation for Peripheral Neuropathy, headquartered in Chicago. (It only has three full time employees, though.) I say now as the Neuropathy Association recently disbanded after about two decades--it too was small and had trouble competing for funds.

i don't have a lot of time today, but searching my name on this forum will lead you to a LOT I've written (or ranted about) previously as to the problem with getting attention for a disease often considered secondary to something else (such as diabetes), the lack of celebrities with neuropathy coming forward to focus attention, and the problems with the major organizations and how they have approached the public attention battle . . .