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Originally Posted by Kobyshelby
Hi everyone , Just wanted to say hi. I suffer from multifocal motor neuropathy in arms and legs . Use a walker in the house , wheelchair outside. Been on IVIG since Jan 2015. Very frustrating disease . Can any members give me an idea of what to expect in the coming months. IVIG is slowly increasing my strength. Have infusions every 4 weeks. Week before my infusions I feel drained. Any info on this disease ? Thank you and look forward to the future on this site.
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I have retired my walker to the closet but it took about a year after I hit"bottom". I have trauma Induced PN(car wreck) with a side of Diabetes and Amyotrophy. I have tried to fast track my recovery by the usual processes such as physical therapy, water therapy, etc. What you may have to expect in the coming months is more coming months. I do not intend to sound flippant but if your healing is dependent on nerve fiber regrowth or repair, it is slow,slow,slow. If you lurk and read, most here try to get the best nutrition, adequate exercise(to tolerance) and sleep. Reams of info on pain management also. Do you know what, if anything, caused your Neurapathy? Good Luck, Ken in Texas.