Quote:
Originally Posted by Littlepaw
Hello,
I am sorry to hear that you are suffering so much and finding little relief. It is challenging to deal with such loss and uncertainty. I am glad that you are working to stay positive. It does make a difference in our pain levels. I cannot answer the SCS questions although it is my understanding from studies that they work best the first while (2-3 years) then the body adapts and efficacy goes down.
Have you tried ketamine infusions? I am getting them now and feel that it is helping. It may also be worth looking at something like Calmare. It is controversial and subject to many opinions but is much less permanent a thing to consider.
Stay strong and keep up the fight.
Sending hugs,  |
Hmm, what is Calmare? I searched it, but am not finding much information. how difficult is Ketamine for insurance to approve? I would much rather do Ketamine than having a device implanted. I also just found out that I would need a psych eval for the SCS. Really? That's frustrating. Just another hurdle to jump through. I am an LCSW (Licensed Clinical Social Worker) so the idea that I have to have a psych. eval is annoying (for lack of better words!).
Thanks for the help. We don't have a CRPS group in VA and have found no "specialists" in the area to really talk about things with. I feel that the PM clinics are like used car salesmen, pushing and selling these devices. I just want to sit down with someone who cares.
