Cheryl,

Sorry to hear about your headache events. They sound scary. I had such a head ache in the middle of the night while on a anniversary retreat with my wife a few decades ago. Thinking back, I wonder why we did not go to an ER.

The MRI/MRA should have picked up a TIA as well as a CT without the radiation risk.

Has anybody suggest a short term increase in intracranial pressure (ICP) ? A spinal tap during the event will cause relief in most cases and be a positive diagnosis. Docs like to avoid spinal taps due to the risks.

I have found that I get headaches from dehydration. A glass of water and I am usually much better within 30 minutes. These happen to me in the early morning. Sometimes, they wake me so I get up and have a drink.

Another issue might be fasting hypoglycemia. Some people have a drop in glucose at 5 to 7 hours after eating. This can cause headaches and behavioral changes. I used to struggle with this and would get grumpy plus have a headaches. A fasting glucose test would be the first test then maybe a 5 hour glucose tolerance test.

I hope you have a doctor or group of doctors who take you serious.

My best to you.