Quote:
Originally Posted by midtra52
I've been dealing with a throbbing headache, blurred vision, ringing in the ears, postural tachycardia and heart failure for 9 years. I just had an MRI done showing a chronic occlusion in the subclavian vein and the internal jugular vein. I had Dr. Collins at UCLA look at my MRI and he said that occlusion will cause these symptoms.
I'm wondering has anyone gone undiagnosed as long as I have and was a surgeon able to reopen the vein or do anything to fix this? I'm scheduled to see Dr. Linker in Louisville in Sept. No one on here has said anything about him so I'm not sure what to think. I'm also hoping to see Dr. Collins at some point to get a better scan done. I'm a little scared to get on a plane though because one time when I flew to see a doctor over these years as they changed the air pressure on the plane my head felt like it was going to explode. I really don't know how I haven't had a stroke or aneurysm in 9 years of this. So I'm hoping this doctor in Louisville has a decent plan.
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I was diagnosed with Paget Schroetters Syndome in 1966 when I was 19, Doctor chose the conservative approach and did not operate. Was this the right decision, I really don't know but I suffered every day.
Fast forward 45 years and I elected to have surgery with Dr Thompson in St Louis, usual surgery plus he replaced part of the subclavian vein with a donor vein. My arm feels like normal again blood flow wise, I am still having some issues and Dr Linker is my Dr. I see him again on July 21st, I suspect it may be scar tissue.
If I can be of any assistance, please let me know
R