Originally Posted by Eskiemom

Hello,

I have a mystery neurological illness on my hands for the past two years. I match small fiber from what I read on this board, but doctors don't seem to think so.

My pain started in my outer left calf and rt ankle two years ago. It had progressed in spotty places around my legs. At one point, a neurologist said she thought I had pn. So I went for Relief Neuropathy treatment. A new doctor took over my care and said she did not believe I had it because I test negative. I've seen over 20 doctors without any clear answer. I twitch constantly and even have rolling twitching thru my legs. Cramping, numbness in small areas of my feet. Burning is most common. I can feel the tuning fork for beyond 15 seconds.

The Relief neuropathy doc and a few of the neuros said my symptoms don't match that of pn and I don't clinically match. Maybe small fiber?

A had two fillings replaced and the numbing injections have left that side of my face in pain and sensitivity and twitching.

I continue to get worse than two years ago. I have done all the supplements suggested, everything that I can find short of rx. No halting or improvement.
Two weeks ago, I did have some light therapy on my feet and legs. Now, I have stabbing pain under both big toes.

I'm a mess and getting worse.
Anyone else use light therapy?