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Old 06-21-2007, 04:43 AM
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dreambeliever128 dreambeliever128 is offline
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Join Date: Nov 2006
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15 yr Member
dreambeliever128 dreambeliever128 is offline
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dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Goodn'plenty,

I just wanted to say hi and to tell you about the experience of one of the guys in our old RSD group.

Randy went down to see Dr. S for a week and all he got out of it was a week stay in a nice motel and an xray of where his RSD was in him. He had a teeshirt made with it. I can't think right off hand what they call the test but it shows the RSD in red and the rest I believe in black, kind of like an xray. He didn't have the ketamine treatments but he saw no signs of improvement with what they did for him.

I do believe though like the others. It depends on where you are at this time with the RSD. Mine is pretty much in remission. I do have my right arm going tonight from where I had 12 allergy shots done in it today. I am hoping it will calm down soon.

Like you, I have the TOS, carpal, cubital, radial, ulner and also triggerpoint in both arms and hand so I have more going on then just the RSD. I am doing very good with my RSD compared to so many others at this point. It's all of the other crap that's getting me down, mainly the IC.

Back to you though, it's a decision you have to make based on where you are right now with the RSD. What I don't understand with the ketamine IV's under a coma, why would a person go through them if they are only lasting for months. I guess it's just me but it sounds drastic for such a small amount of time relief. I honestly believe like someone else said that if a person kept looking in their nearby areas they might find that right Dr. that could do as much for you. This is just my opinion of course but I think that Drs. are becoming a bit more aware of the RSD but it's just that there are very few that want to tackle it since it's such a hard illness to get under control. Have you tried the University hospital's in your area? Sometimes they can do quite a bit for people. I had one good Dr. at the U of C and actually had a good pain Dr. until they brought in some idiot from Kansas that knew nothing about anything but Fibro.

I know I might here some heck from people about Dr. S and I'm not saying he doesn't help some people, but I think it's just that you have to be one of those people that the help he gives will work for you. That goes back to if you don't go, you don't know.

Glad to see you around and I do hope that you find that right decision. Also I would pray for it and ask God to help you make that decision. That works for me a lot of times.

Ada
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