I know this is a RSD/CRPS group but many of the members also have POTS so I'm asking for help here. What are people here doing to control their POTS symptoms? My POTS is out of control. I bought a Fitbit and it shows my heart rate skyrocketing every time I stand up. A definition for POTS is an increase of 30 beats per minute upon standing within the first 10 minutes. Most normal people are about 20 or less. Mine is averaging 50-60 and sometimes close to 100 BPM increase. I'm at my maximum calculated heart rate. Needless to say, I can't stand up long and this has got to be running my circulatory system ragged. I get dizzy and pass out all the time. The severity could be related to the extreme edema in my entire right leg and lower abdomen. I've done all the normal hydration stuff, take mestinon for this, supplements, whatever. Any help fellow POTS sufferers? The heat is making it particularly bad.

Thanks,

Denise