Newly Joined
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Join Date: Jul 2015
Posts: 1
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Newly Joined
Join Date: Jul 2015
Posts: 1
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New member
Hi. My name is Pam. I was diagnosed with ocular MG 5 years ago. It progressed into the rest of my body. Had my thymus gland removed Aug 2013. Had a bad crisis Nov 2013 which resulted in respitory arrest followed by 48 hours on a ventilator. Since then I have been diagnosed with diabetes and thyroid issues. 1 year ago I was removed from my management position because of my health. I am presently taking 1250 mg cellcept twice a day, 180 mg mestanon SR bedtime, 60 mg twice a day, 20 mg prednisone. Still having eye droop and breathing problems. My neurologist is talking about IVIg. Can anyone tell me about their experience with it?
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