So we saw a physical medicine rehab doctor (Children's Hospital). He was very thorough, asked lots of questions, but had no new suggestions for treatment. They don't do ultrasound of the nerves there. He did notice weakness of the toes with dorsiflexing against resistance, and the weakness with eversion, and the fact that the extensor digitorum brevis muscle of the foot is pretty much non-existent due to the nerve damage. Also, he said the more recent changes in skin appearance is due to skin atrophy. I didn't even know that was a thing with CRPS. I don't know if that means the CRPS is becoming more entrenched and chronic. It's so black and white to say that in writing. But it scares the living crap out of me.

We have an appointment next month with U of M's PMR doctor, since this one wasn't much help, and I'm still trying to get an appointment for U of M's neurosurgery department. I'm calling tomorrow to make sure they really do the nerve ultrasounds there. If not, then I think Cleveland Clinic may be the next step. Good grief. A four hour car trip for one little ultrasound. But it looks like they have an excellent peripheral nerve program too, so I'm sure it would be worth the trip.