[QUOTE=canagirl;1155210]Hi

Once again, I'm on here complaining.

I can't move on, I cant accept, I cant be happy with what I have in life.

I'm miserable. My pain is worse all the time. The scary and maddening thing to me right now is when I lie down my body gets really heavy, hot, feels numb, feels like I'm being squeezed all over and burns/ stings really badly. I'm scared.

I know nobody can help it tell me what I'll be like in a year, so I dont know why I'm posting....I am mentally Ill.

I constantly feel like I'm in a bad dream. That this is magically going to go away. I'm in denial. I build up this wall of denial that lasts for a few or a few days then it comes crashing down and I'm hysterical again.

I just want it to end.

I don't know what to di with myself anymore...


canagirl,
My heart breaks for you too. I know how your feeling , mentally and psychically. This is all scary and maddening, but know you are not alone in this kind of pain. I also have widespread (SFN) roaring tinnitus along with surges of buzzing that I feel in my core and it spreads down to my legs and arms. I get squeezing pains in my legs and arms and burning in my legs and feet, sometimes burn patches on my torso, face and mouth. There are days where I get stinging pain in my feet and toes. So I know what your going through. This is my fourth year of suffern from this awful disease. I cry alot and miss my "old" life. As bad as my pain is , I must tell you that in some ways I am better. (Even my last Punch Skin Biopsy in 3 sites on my leg from 3/2015 came back "normal". As exciting as that is, I know (from doing my own research ) you can have a "normal" Biopsy and still have small fiber neuropathy. My Neuro-muscular Neurologist from Mt Sinai Hospital in NYC, acted "stumped" ..she doesn't know how I could still be having neuropathic pain with a "normal" biopsy. "She doesnt understand the correlation between my pain and Biopsy results"..she says: "MY NERVES ARE HEALING! THE MISSING NERVE FIBERS FROM MY LAST ABNORMAL BIOPSY FROM 7/2013 GREW BACK, NO ROOM FOR FALSE NEG, SHE DID THE PATHOLOGY, MEANING SHE COUNTED THE NERVE FIBERS HERSELF". SO why am I not feeling much better? Are my nerves really healing, and its just going to take more time (?) Am I slowly getting better (Healing) instead of getting progressively worse?... I wish I knew..
You can imagine how frustrating this is for me. So with all of that said
Please don't give up hope. According to a NYC Specialist and my last recent Biopsy , I am getting better!! . SO Canagirl, PLEASE DO NOT GIVE UP HOPE YOU WILL GET BETTER!!
I dont know what meds your taking for your pain. Sounds like you haven't found your right med-combo yet. I hope you have a good Pain Management Doctor and a GOOD Therapist you can talk too. I am still on only 300 mgs of Lyrica. Tramadol as needed. Lidocaine patches for my burning feet. I take Klonopin for my anxiety. I soak my feet in cold water with Epsom salts , that helps. I still try to stay active. I go on the Thread Mill even if my leg and feet are hurting. It doesn't make the pain any worse. I refuse to give into this beast.

I tried to private message you (returned your email). I left you my phone number. I have not gotten a responses from you. It sounds like you could talk to someone that understands what your going through. Please try to contact me. I am here for you to talk too. I hope you feel alittle better soon..Im finding the "healing process is very slow" but it keeps to keep me positive and hopeful. Hope to hear from you soon.
Marie xoxoxo