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Old 07-16-2015, 04:15 PM
Eskiemom Eskiemom is offline
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Join Date: Jul 2015
Posts: 29
8 yr Member
Eskiemom Eskiemom is offline
Junior Member
 
Join Date: Jul 2015
Posts: 29
8 yr Member
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Quote:
Originally Posted by mrsD View Post
Well, the bottom line is.... if nothing works for you, then you may have a hereditary genetic form of PN.... CMT (Charcot Marie Tooth)

You can investigate testing with Athena labs... which is expensive, but it may provide an answer for you.
Thanks.
I've asked five neuro's and my primary and they all say I don't have it.
My clinical exam is perfect. Strength, reflexes, feeling, etc.

Yet this afternoon, my right toe turned into a sparkler! And the symptoms travel up the entire inside of my right leg from great toe to top of inside thigh.
Rumbling twitching all over my legs.

I had testing by Athena Labs two years ago....those neuro's said they tested me for everything and all came back normal. I'll have to check if they tested for CMT.

Last edited by Eskiemom; 07-16-2015 at 04:19 PM. Reason: additional info
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"Thanks for this!" says:
Kitt (07-16-2015)