Welcome Hummerfriend,

It sounds like you have certainly found things that are moving your recovery forward! Congrats on that, it takes a lot of trial and error. I agree that a positive attitude and slow, deliberate, incremental exercise make a huge contribution to improving ones life with this disease.

You were fortunate to have an injury that did not require surgery or hardware. That certainly adds a layer of complexity and things are never quite the same even after the most beautifully executed procedure. I think it is easier for the body to get back on track without those challenges. Even with them it is still possible to make tremendous progress.

Your medication regime is extremely progressive and I am curious how this came about. Many of us have had difficulty finding someone to prescribe LDN and you are the first poster I have seen write anything about Dibenzyline (phenoxybezamine). I was very surprised by this. It is recommended by Dr. Stanton-hicks of Cleveland Clinic but is almost impossible to get. There is no generic currently in the states and I found brand priced at upwards of $3000.00! This non-competitive alpha blocker helps calm injured nerves because once nerves are injured they sprout extra adreno receptors which makes them more hypersensitive and reactive to temperature etc. Studies on it are quite good. I ended up ordering some from overseas but have not taken it. It is in my back pocket so to speak.

How on earth did you find a PM who prescribed these meds? Are you in the US or elsewhere? Wow is all I can say, you lucked out!

Keep up the good work on your recovery! With your youth, ongoing work and surprisingly different medical care you are sure to beat this thing.