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Old 07-19-2015, 07:00 PM
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Quote:
Originally Posted by Meech View Post
I'm not even sure yet if I will be MuSK positive. So far just abnormal sfemg. I do know I have had very noticeable weakness in my arms that my original referring neurologist that I see said would be due to MG if it turned out to be what I had. When I asked the new neurologist who diagnosed me, she said probably not?? So now I don't know if I should be looking for another cause for that issue.
Weakness in your arms is absolutely on the list of main MG symptoms! Just google "myasthenia gravis" and you'll see. I can't imagine what the new neurologist was thinking. Maybe you described the weakness in a way that didn't sound typical of MG to her? Or maybe she thinks that since you tested negative for the AChR antibodies, you must have MuSK, even though you haven't been tested for it yet? If she thinks that, she's also wrong, because there are many of us here--including me--who have a diagnosis of MG but have never had a positive antibody test of any kind.

Abby
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