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Old 07-20-2015, 11:14 AM
Always_Believe Always_Believe is offline
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Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
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Originally Posted by RSD ME View Post
rsd's symptoms can vary as time goes on. it can hurt to the touch at first and then start hurting more internally in its later stages. meds also numb the pain of touch so the sock theory your dr has at least to me is not correct. some drs think that if you don't have physical symtoms that can be seen all of the time with rsd then it is not rsd or it has gone into remission. that is not always the case and a common misconception i hope that all drs will someday realize. all we can do is learn as much as we can about rsd and try to raise awareness to others. if i were you i would try to find another pm dr and neurologist for a second opinion. as for treatments there are many others along with meds. scs is not the only other solution unless you want to try it. but by learning more about rsd through research and others experiences on this forum you will find things like calmare, ketamine, hbot, nerveblocks and pain pumps. also hypnosis and pain coping drs. and accupuncture that some have found worked for them but did not for me. and there are other meds you can try if your dr okays them. just keep learning and searching for a dr who can help manage your pain better. i know its hard when you're feeling so much pain, but you will be surprised how much strength you have when you really need it. you can do it! just remember to never ever give up. you are not alone. soft hugs.
My neuro is actually addressing the issue much better than PM. With medicaid, it's a bit difficult to find providers, so I am pretty well stuck right now with the PM.

I know there are a lot of other treatments, my PM is not discussing those. He wants to do a LSB, repeat it if it's effective and then go on to SCS. I tried acupuncture for my endometriosis - not effective. I appreciate the "pain coping/pain psychologists" aspect but I am in real pain...not something I can think away or change my mindset to eliminate it. I continually do physically what I can. In my mind, I am 100%...my body tells me I'm not, not the other way around. While I agree that coming to an emotional place of acceptance/activity modification will help me on an emotional level, it isn't going to reduce the edema, the color changes, the temperature difference or the pain.

I have almost fallen 3 times already today due to my knee 'buckling/giving out' followed by sharp, shooting pain through my knee/down my leg, then razors in my foot. Thank God for the grab bar & fold down shower seat!
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