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Old 07-21-2015, 06:02 AM
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DejaVu DejaVu is offline
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DejaVu DejaVu is offline
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DejaVu's Avatar
 
Join Date: Apr 2008
Posts: 1,521
15 yr Member
Default Lupus and APS Can Have Many Strange Symptoms

Hi Barbie,

Either or both of these conditions often have some strange symptoms and a wide range of medical manifestations.

Many people with each condition report a myriad of central and peripheral neurological symptoms.

Not only did I have APS. I was a moderator of a large international internet forum for Lupus and related conditions, including APS, for many years. I was also a charter member, along with several specialists (Medical Doctors), of a committee which founded an APS organization.

Usually, hematologists and/or rheumatologists specialize in diagnosing APS.
More often than not, a Rheumatologist tests for the antibodies and combines with finding with symptoms and with other findings, in order to diagnose APS.

If your medical professional has diagnosed APS, please listen to him/her. Educate yourself through contact with people truly highly educated and highly experienced with APS and/or Lupus.

The truth is: There is much controversy amongst the specialists doing the diagnosing and treating of APS. There is NOT clear consensus, in everyday practice, as to which medical events are necessary to diagnose and to treat APS. Many of the doctors actually dealing with these conditions do not follow, nor agree with, the most conservative "case definitions" of lupus and of APS.

You will find more insightful responses-- and facts-- about the various manifestations of APS where there are people living with APS, like the sites I have mentioned above, where there is much information and there are also forums to ask questions and to interact with other people living with APS.

Many of the accompanying signs/symptoms are often neurological in nature.

If you search antiphospholipid syndrome and neuropathy, you will find many sources of information. For instance, a very quick search bring up these two. There are many more.

http://www.ncbi.nlm.nih.gov/pubmed/20156929

http://pmj.bmj.com/content/79/928/81.full

I hope you have some helpful interactions with some people dealing with these conditions, people highly educated as to the many signs/symptoms and complications, as well as the true nuances of these conditions.

To Our Healing,
DejaVu

Last edited by DejaVu; 07-21-2015 at 03:54 PM. Reason: Error
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