Hello Jo,

I just wondered what you were told by others in the UK receiving ivig for SFN? As you know, it was a suggested trial for me. So if the ivig does help what happens next?

The only way I guess to prove it works is to repeat the skin biopsy but they won't let you have a repeat biopsy in the UK, unless you pay for it yourself.

It is all so frustrating, keen to hear what you have learnt anyway as I am also confused.