Quote:
Originally Posted by canagirl
What I thought might be me getting a tiny bit better might just be progression???
Lately , (last week or two) my sensations seem to be getting a bit more dull. In it's place I seem more " heavy and numb" ( not actually, but feels this way) and much more burning in lower arms and legs that feels like somebody peeled my skin off and it's raw. the electircal sensations, buzzing , twitching etc seem to be slightly more dull or happening with a weaker intensity.
Does this simply mean that my nerves are simply gone ( small fibers) in those areas or that they are now so damaged not as many can send out these signals? Am I headed down a path of no return here in terms of healing?
Why is mine continueing to progrss and change so quickly? Why isn't it stabilizing ( like so many on here claim) or improving. Why the continued rapid progression?
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Through out my progression, I had so many things that would ease up just as something else would come on or worsen. I think its the migratory nature of this beast.
I can't for sure say I am stabilizing as I sure hope to improve from my current state, but I am grateful that I can function compared to how I was.
There isn't a day that goes by that I don't have something going on. I can't sit in certain positions or my legs and groin will go numb and I can't walk. My body hurts to move. My connective tissues and joints don't feel stable and hurt. I get dizzy. I have random shooting pains that make me gasp and almost knock me down. My left arm and shoulder had the vibration thing yesterday and now my shoulder feels dislocated. Last night at 2:30, I woke up feeling like my legs and feet were going to explode off of my body from pressure and nerve pain. I get swept over by sudden episodes of fatigue that last for about 1/2 hr. I could keep going on....
I think part of the difference with me is that I do have improvements but my nervous system is still pretty sick. I try to remain calm and deal with it vs panicking about the future. It is not easy. I get upset, but I'm getting used to it and feel hopeful that healing is possible.