I have a neuro, ortho, physiologist but none of them offer more than pain meds, LSB or scs. I had some success with the first three LSB but they only lasted s few weeks and only took away the buzzing and sensation issues. The fourth one went horribly wrong and I have been left with excruciating pain, sometimes in my entire leg. The current physio will not try again. Cymbalta and lyrica were not good for me and did nothing to relieve the pain. None understand or offer the infusion options or even compound cremes to try. I am grateful that everyone agrees on a diagnosis including every IME... But none of my current Drs is able to treat it beyond narcotic pain management. The pm does give me some relief and up until a couple months ago... I was able to function fairly well except they won't allow me to return to work due to the pm. The last few months I have been staving off dose increases but unless we find a new strategy soon... I am going to have no choice. I'm back to no shoes unless I have no choice and staying in bed most days because the pain is too much to weight bare. The sensations are raging! And this all keeps me on edge in fight or flight... My cortisol lvls must be through the roof! I can feel it constantly agitated and very angry.

The cycle of grief and loss just never ends. I need another dr who knows how to treat cprs to attempt other options before telling me my life is over and I'll take these meds until some miraculous remission or forever. I need to attempt less invasive options before choosing the risks associated with scs, which isn't even a guarentee it will work.

The pain has got to get better one way or another. I can't take it much longer without checking myself into a padded room....