None of us knows how our disease will progress from year to year or even day to day. All the more reason to enjoy whatever level of functionality we have on any given day.

I have three basic priorities each day:
1. Work to support my family (some days its very difficult).
2. Enjoy life as much as possible.
3. Take care of my body the best I can, so that I can keep doing #1 and #2 as long as possible.

Carpe Diem