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Originally Posted by Healthgirl
Did you have the punch biopsy?
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No punch biopsy. The Neuromuscular specialist I saw on April 1st left a note in the file that he felt a biopsy was not warranted. Since the NM Specialist is considered the "expert" on neuropathy, I'm fighting an uphill battle to get that done - unless there is significant change in my symptoms. (I should have known better than to take an appointment on April Fool's Day.......)
They have done a lot of testing, and have covered a lot of the typical things to rule out other possibilities. Still, some basic stuff like vitamin B levels have not been tested. My primary doctor has been willing to test for things when I ask - as long as it is reasonable. I don't think I can bring him a "laundry list" of things I want to test, but if I ask about one or two things at a time that are relevant to my symptoms, I think I can make some progress.
I have a pretty physical job, and it is a lot harder with the PN symptoms. One of my fears is that I'll reach the point of not being able to work and support my family. I have good disability insurance, but without a diagnosis it would be hard to make a claim.