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Old 07-24-2015, 10:50 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Yes, many of us have sensory and motor issues. I have hereditary sensorimotor neuropathy, with numb legs and hands as well as severe muscle weakness, but this has been progressing all my life and I am now 53.
This usually means that you have both small fiber and large fiber damage, the former governing sensation and the latter muscle weakness.
Right now I am on medication for pain and muscle spasms and spasticity. I have recently gotten AFO ( ankle foot orthotic ) leg braces which help with the instability in my legs.
No one can say how fast this will progress, generally it is a slow progression but there are exceptions.
Does anyone in your family have PN? Their symptoms may be milder than yours or have set in at a later age and still be related.
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