Junior Member
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Join Date: Sep 2006
Location: NE New York
Posts: 20
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Junior Member
Join Date: Sep 2006
Location: NE New York
Posts: 20
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Hello, Thelma--Thank you for thinking of us. We are doing pretty good.
Wally, Jr. is on a bi-pap, still able to eat pureed food without choking. The bi-pap has changed his life. We didn't realize that CO2 was building up to levels that were making him sleep all the time. He felt well enough to go to Maine last Fall and again in April of this year. In April he was invited to Bowdoin College in Brunswick, ME for the screening of "Mind Games," a film about Dr. Thomas French who lived with ALS until September 2005. Dr. French graduated from Bowdoin. It does Wally a world of good to get out like that.
He has been writing using Facilitated Communication (used by the autism community)--he still has a tiny bit of movement in his right arm. He is practicing with a TOBII (eye gaze) for when he can no longer FC.
How have you been?
Our best to you, Wally's Mom
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