NeuroTalk Support Groups - View Single Post - Another VERY Curious SCS Member

St George 2013 · 07-25-2015, 08:34 AM

From Rrae's post:

"In reading thru your thread, it's obvious that your pain is not being adequately controlled, thus you run out too early. I wonder if your Dr would consider putting you on pain patches? Have you tried those? I wish I didn't have to take anything, but for the sake of quality of life, I am grateful for my Fentanyl 50mg patches that I change once every 60 hours.No ups and downs with withdrawals to worry about. Just thought I'd throw that out there...."

Thank you for your service to our country......I'm an Air Force brat and my dad served 2 tours in Vietnam. He wasn't physically wounded but the mental wounds never left him. God Bless Him and you.

I wanted to comment on Rrae's pain patch shout out.

I'm on BuTrans patch 20 mcg/hr plus Percocet 10-325 three times a day. It started out for breakthrough pain but I have to take them everyday so it's actually part of my treatment plan. This patch didn't change my life but it does help tone down the pain. I know this because I went without one for 5 days at the beginning of the year and was in horrible pain. At least that showed me they worked...lol

I have small fiber neuropathy that affects my feet, legs, hand and arms. Sometimes my jaw and teeth

My skin punch biopsy in Sept 2013 showed no A or C fibers left in my feet.

Due to those results my pain mgmt. dr wants me to try an SCS. He was honest with me and said I might get only 50% relief in my legs and feet but he feels this is my best option for a better quality of life. Being home 99% of the time is NO life whatsoever.

I've put off doing the trial due to fear of having something implanted in me

Just kinds freaks me out but I may try the trial after the 1st of next year.

My husband had major surgery on May 20th (cervical schwannoma tumor removed, they operated neck, front and back. 10 hour surgery) and he's having a very hard time recovering. I won't even be able to consider a SCS trial until he is back on his feet and able to help me.

Sorry the post is so long but I haven't written on here in a while. Been reading all the posts though so I wasn't gone

The BuTrans patch is only changed once a week which is very convenient for me.

Take are and please keep us posted.

This is a very special place that I found in 2013 and so very glad that I did. These people are amazing and always ready to help in any situation.

Debi from Georgia