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Old 07-25-2015, 09:26 AM
WildIrish WildIrish is offline
Junior Member
 
Join Date: Jul 2015
Location: North Carolina
Posts: 21
8 yr Member
WildIrish WildIrish is offline
Junior Member
 
Join Date: Jul 2015
Location: North Carolina
Posts: 21
8 yr Member
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So, I had the SFEMG with Dr. Massey, as well as a standard EMG and a nerve conduction study. She said the SFEMG did not show any indication of MG, so my nerves are not the problem, but the test showed that my muscles are abnormal. She decided that my muscles are weak because I take cortisol, and that I need to stop taking cortisol and exercise and lose weight.

I tried to tell her that I only started the cortisol in 2011 (for adrenal failure, which means I must take it) and the weakness and fatigue have been a problem since I was 12, but she just repeated that cortisol causes muscle weakness, and that I need to stop taking it and start exercising, and my muscles will get stronger.

She did not order blood tests for the antibodies, she did not do a Tensilon test or a trial of Mestinon. So I didn't really have a clinical evaluation for MG. What I had was an abnormal EMG with a completely off the wall interpretation.

I could have predicted this...

Any ideas?

Rose
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