Quote:
Originally Posted by en bloc
So happy to hear from you Mat....was getting concerned with your absence.
Honestly, I think you need to give a more time before making an assessment on the SFN. It is not uncommon for pain to be deferred (in a way) when you have something else going on. Your brain can only focus on one thing at a time, so to speak, and therefore your body is in healing process from the gallbladder removal. You have a lot going on pain wise and need to let these other acute issues resolve, then you'll know whether your SFN is really doing better. If I remember correctly (whether you or another poster), this has happened before...where infection or other pain sort of put SFN on the back burner as they say. Once things resolved, the SFN come right back. I hope this is not the case with your current situation, but I think you need to let everything heal before making any conclusion on the SFN.
You seem to have an issue with repeated infections. Have they checked your IgG subclasses? Checking a total IgG is not enough, as many with primary immune deficiency have normal total, yet one or more (of the 4) deficient subclasses. Just a thought.
Good to hear you are on the mend!
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Thanks for your concern Enbloc I'm touched and grateful to you for remembering stuff about me too. Something did flag up showing autoimmunity/ infection but I can't track it down myself so need my neurologist's last letter to come through. I've used your point about break down of IgG on my list of things go ask GP about on Wednesday.
I feel I'm in a position of strength now in one respect - all these doctors have let me down with my op and are all being very charming in effort to stop me taking it any further. I plan to use my GP's sense of guilt to push for a referral to an immunologist. I completely agree that something seems awry with my immune system and I would like to find out what I order to try and prevent any further infections in future. None of them are disputing that I have autoimmunity because it's 100% clear that I do.
If I have a primary immune deficiency is there any treatment for it?
Mat x