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Old 07-25-2015, 10:18 PM
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Jomar Jomar is offline
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Jomar Jomar is offline
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Join Date: Aug 2006
Posts: 27,721
15 yr Member
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Quote:
Originally Posted by R.AddisonCRPS2 View Post
Hello Everyone!

My name is Raechel and I live in Washington state. I was diagnosed with CRPS 2 this week and needless to say my life is in shambles. My children are being denied the ability to live with me because I am on Opiates for my pain. Yes you read that correctly... my children are not allowed to live with me because I am on pain medication. (so says the state of washington)
On and off for the past two weeks I have had these what I can describe as "flare ups"?
I guess I should start off with I started having symptoms last July, 2014 after a 13 mile hike in the mountains with my now husband. My pack on my back only weighed less than 25 lbs i think it was 24lbs to be exact. I DID NOT wear my hip strap and this is where i am told I made my mistake. I came back from that hike and I have never been the same. I was finally diagnosed with a brachial plexus injury to my right shoulder, with a 25% loss of nerve function diagnosed using the painful EMG test. My injury has now turned into CRPS type 2.
The pain goes up and down in severity, is a 10+++ at its worst!!
But the last two weeks, my skin on my hands is peeling? and getting worse everyday.... My pain meds are not touching the pain at this moment, and every second of typing is making it worse, the numbness and pain. My symptoms have now spread to my left shoulder and my right hand turns colors... mostly blue.
Am I the only one that has the skin flaking off and such? I feel as though some of these symptoms do not even apply to a nerve injury! lol. It makes no sense to me!
I AM SO IN NEED OF SUPPORT AND REASSURANCE! THAT MY LIFE WILL IMPROVE! I AM LOSING HOPE AS THE DAYS GO ON... that i will lose my children and my will to live... I feel like this is so unfair and i didnt ask for this disease!!! so not only do I have to learn to live with it, because of the pain it causes I have to learn to live without my children as well and that does not seem fair!

Have you had any expert PT at all?
The BP injury & the backpack factor, sounds very similar to thoracic outlet syndrome. (TOS).
We have a TOS forum with info and also passive & self care things to try..
Sometimes consistent and focused posture work is very helpful.. But if it is nerve pain due to impingement it won't get better with meds and no treatment.
http://neurotalk.psychcentral.com/forum24.html
Check the useful sticky threads above the main section ..

If you can find some pain relief for the BP injury maybe the overall pain level will lower..
Some w/ TOS injury do get RSD/CRPS also... and some of the symptoms can overlap..

And many MDs are not fully up on TOS info, so almost need experts - PT /chiro or TOS doctors for best treatment.
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