Quote:
Originally Posted by JoannaP79
Hi all, on a similiar theme to some other threads but my thighs often turn deathly purple recently, more a purple white than deep purple- I dont mean livedo reticularis laciness but more the entire skin is purpley white. If I massage them and rub them the normal colour comes back for a short time. They tend to be like this when Im stood up.
Does everyone with diagnosed SFN throughout their legs get this? Is this only for some of us?
Ive probably asked before - has anyone ever improved in terms of pain? Has anyone noticed that with this improvement there is a return to more normal skin colour?
Its making me so depressed seeing the physical changes in my legs. I can't even hide it well with clothes as the shape of them has transformed now that all the muscle in legs and bum have shrivelled away disproportionately. My shape just looks like a melted candle, haha. Got to try laugh.
Sorry to be a whiner today. I'm having one of those days where it is just all too much. I feel so old and Im still young so this is really too much to manage emotionally sometimes. I am crying alot at the moment watching the changes happening so quickly.  |
I am sorry you are feeling down mentally as well as physically. One of the common themes is to excersize to tolerance. If you can get a stationary bike and spin until you can't stand it anymore, that may improve your circulation. I apologise if this suggestion is rediculous as it is hard to see your situation over this computer. I do not have SFN but at one time my pain was at a level to prevent sleep and summon depression. One sage that I read once said that your pain will be, over time, changed and replaced by something else. That is like saying if you don't like the weather hang around for a bit. So, yes the pain will change,move,lessen here worsen there all the while you are getting tougher and more able to cope. Don't worry about bitching, I hope that is not a foriegn word in the UK. We all have to overcome a sense of loss in order to move forward. This has no time limit but I suspect that loud and vehement bitching may shorten the schedule. I had a thing called Amyotrophy which was a muscle wasting fast paced nightmare with the aforementioned pain also. I was astonished that a person can have several things go wrong at the same time. At least with the muscle wasting, it had a "critical phase" that ended about six months or so. Hope you are still able to excercise to tolerance and do what you need to do in order to make it to the next day as that day may be the one that makes up for a bunch of bad ones. Good Luck, Ken in Texas.