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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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the greatest danger we all face...
...is getting into the box that mainstream medicine offers us. The lead of this thread is an example. Just, what? Six months ago? The US neurologist's association was reported as declaring that no protective strategies exist? (That's not exactly what they said but is how it was spun.) Yet this lead seems to say the opposite. So who do we believe? My answer would be the one which offers hope.
A very uncomfortable fact is that we have a problem with our brains and one of symptoms is apathy. Combine that with forces that push us to be "good patients" and we have a problem. As Jaye points out, twenty years from now just doesn't get it.
The nice man in the white coat offers us a nice box. It's tempting. Warm. Dry. Rather a comfortable box. All except for that lid...
The cure is around here somewhere...
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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