I have just discovered this site. I was given a diagnosis 4 years ago as Crest/Scleroderma. My Dr. is not very communicative, and treats me/other patients, that we do not need to know about our condition. That lead me to the internet, which of course can be very educating, but at the same time, not neccessarily appropriate. I felt as if I was given a death sentence. 4 years has passed, and I am much better with the whole idea, not the disease. As time has gone on some things are better and some are worse.