Hi, Meech.

I'm glad you have a diagnosis. Many people struggle trying to get the proper help.

MG only affects the head, eh? Super wrong!

MuSK MG can significantly affect the chest wall muscles.

Do you have a MG expert in your area?

Your doctor is right in that not all symptoms should be ascribed to MG. However, they shouldn't be ignored, nor should they be minimized. If there is something else going on, then more investigating needs to be done.

If you have breathing issues, you need a pulmonologist. They work in tandem with neurologists for patients during a MG crisis. Neurologists are NOT qualified to assess breathing! It's always a good idea to get a baseline reading so that the neurologist, the pulmonologist, and you know how far your breathing function has gone if you become worse.

MG is all about muscle weakness that becomes relatively worse with activity and relatively better with rest. It's all about fatigable muscles. It's fairly easy to determine if a new symptom is due to MG or not.

MG can have pain as a secondary symptom, if muscles become weak enough. It's similar to athletes who overuse their muscles and have cramps or spasms. With MG patients, it just happens more quickly.

Whomever you have manage your care, just make sure that you can communicate well with them. It's so important that a doctor listen carefully and be responsive, not arrogant and flippant.

Annie