Hi, Juliejayne,

Fatigable muscle weakness is just what you described. You use the muscles, and at first you can do whatever, but the longer you do it, the weaker the muscles get, until you can't do it anymore. I have that too. Walking, vacuuming, sweeping, scrubbing, stirring. Have to stop and rest the muscles after about 2-3 minutes. No strength. Even something like making the bed is hard for me. By the time I get to the fourth corner, I can't lift the mattress to put the fitted sheet over it.

But I also have trouble opening doors if they are heavy, or carrying anything that weighs more than about 15 pounds. So there is muscle weakness as well as fatigability. I suspect some of the doctors think we are faking it, or just not trying very hard.

I hope you can get a diagnosis soon.

Rose