There are rare cases where it causes labile BP (fluctuations both ways frequently), but not really what you describe...high to higher. I think you would benefit from a full cardiac/vascular work-up.

The mechanism behind the BP dropping is that there is failure to recognize the position change, and therefore it doesn't increase BP to compensate for standing. For what you describe, there would be no failure. I really think you have some sort of other cardiac/vascular issue going on.

I would agree you are poorly controlled (as there is no really proper Dx, so nothing is controlled)...and yes, OI does get worse under these circumstances. BUT it is not within the guidelines of the typical OI.

Please post the link about high to higher BP for OI you are referencing. I'd be interested in reading/educating on this.