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Old 07-30-2015, 12:10 PM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
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Quote:
Originally Posted by en bloc View Post
There are rare cases where it causes labile BP (fluctuations both ways frequently), but not really what you describe...high to higher. I think you would benefit from a full cardiac/vascular work-up.

The mechanism behind the BP dropping is that there is failure to recognize the position change, and therefore it doesn't increase BP to compensate for standing. For what you describe, there would be no failure. I really think you have some sort of other cardiac/vascular issue going on.

I would agree you are poorly controlled (as there is no really proper Dx, so nothing is controlled)...and yes, OI does get worse under these circumstances. BUT it is not within the guidelines of the typical OI.

Please post the link about high to higher BP for OI you are referencing. I'd be interested in reading/educating on this.
This friend sent this but I can't really see where it says about BP going up either? I think she's just got confused. Tell me if you see anything - my concentration is right off just now. I know I have something that is wrong with my autonomic responses but it isn't following any obvious pattern at all it seems.
NDRF.org/orthostat.htm
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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