I do have some arrythmia which worsens with certain medication or when I flare up. I felt my nerve conduction tests were quite basic to be honest and didn't look for autonomic dysfunction as far as I know.

The neurophysiologist said there was one they don't do because the equipment was too expensive and the test itself too subjective. The other I feel that would have been useful was the thermostatic one -
measuring sweat. I'm fairly sure this one would have shown a faulty response. Maybe when we get to the new area I will be referred for more extensive testing because the hospital is nationally renowned for testing for secondary Raynauds/ Scleroderma, has an immunology department. If not I'll try to get a referral to a top centre in London.

Do you know anything about how common paired ogoclonal bands in CSF are? This is so far the only thing that my neuro has found. For the rest he simply says galvanic responses are normal and skin biopsy shows no sign of small fiber neuropathy. Re Ivig he writes "there is no evidence of end organ neurological damage and I think any treatment should be based on her systemic and rheumatological features." They have since discussed my case and decided on no further treatment for the time being. Neither have me on their clinic lists now as they are expecting me to relocate towards the end of this year and refer to this in their letters. My GP is meant to be organising a Doppler MRI for me in the main hospital. Meanwhile all my LFTs (liver function) are sky high so waiting for them to come back down following surgery. So he says this would invalidate all my inflammatory markers until I'm infection free. I certainly don't feel very well but hard to know what's causing what. I'm to stay on a low dose of Prednisolone for the immediate future. I might try to keep tapering and get off it as I do hate the thought of masking things and I know that the longer I stay on it at a low dose the more my adrenal function will depend on it.