((Got2)) It must be very frightening for you to get this diagnosis. Scleroderma just isn't something a lot of people are familiar with in their lives.
In addition to the great emotional support from people here, you might want to educate yourself if your doctor is being an ****. Then again, you probably already have looked around everywhere!
I checked on a couple places where you might find a lot of people in your same condition. NOT that I wouldn't want you here with us! It's just nice to be where people are experiencing the same ailment as you. I'm just thinking about your well being here in case there isn't anyone to share with you about scleroderma. As the other folks said, check out the autoimmune forum.
Here are a couple of links to Sclero message boards and a couple links to places with more information about your sclero.
Scleroderma Foundation message board
Sclero Org message board
MedicineNet information
Mayo Clinic info on Crest
Crest Syndrome
But again, we have tons of people here who are wonderful listeners and supporters so I hope you take advantage of that. I just thought you might want also to find a message board where others share your diagnosis.
Hugs and best wishes.