Quote:
Originally Posted by en bloc
As far as I can tell, pattern 2 is the appropriate class with same number in both serum and CSF...of course this class has the most possible options.
I know you have experienced several infections recently,,,has there been any question of CNS infection (which can show up with class 2 bands)??
What we need here is Glenn!! Let's hope he sees this post tomorrow morning and can shed some light on the topic. I wish there was a way to 'flag' the thread, to make sure he sees it. I'll be watching for him as best i can and ask him to check it. You can also message Glenn your self and ask for his input. Just a thought. I just know we need someone with his experience/knowledge to help sort this out more clearly for you.
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Thanks Enbloc - I don't think I've come across Glen yet? Sorry Glen if I have and have forgotten. I rely heavily on another UK based forum for support re connective tissue diseases so can get in a muddle easily. I was told about this forum by someone on there and have learned so much from it but I'm very much an artist rather than a scientist so I'm learning from scratch in my own idiosyncratic way and often fail to grasp the scientific minutaie.
The tap took seven attempts and one lot of CSF was contaminated by trauma, leaving a small amount for these bands. Yes to category two -which is the broadest as you say. I really don't know how my rheumy and neuro can dismiss the idea of lupus or Vasculitis as so unlikely for me but they have spoken to one of the UK's Vasculitis experts so I have to assume it's not some unusual presentation of Behcets.
He did say Scleroderma was much harder to rule out for me because it develops more slowly so wouldn't necessarily make itself clear yet. This is the autoimmune disease I most fear so I really hope I do just have a very unusual presentation of RA as currently diagnosed with. My propensity to drug intollerence is the other main problem I pose re treatment. But I've tolerated (just about) 7 lots of powerful antibiotics this year as well as steroids so I think they are using this to get out of paying for more expensive treatments myself. That said biological therapies make people very vulnerable to infection so maybe they are right to sit back and wait.