Quote:
Originally Posted by Lara
You've typed levido, but do you mean Livedo?
Livedo Reticularis looked a little similar although there are several different types of Livedo and looking through the information on Livedo, they're usually caused by some serious underlying conditions and I would doubt that 3 of you in same family of varying ages would suddenly develop that plus some of the info about the benign form of Livedo actually says it resolves with heat... and that appears to be the opposite of what you're all experiencing.
There is another condition called _ Erythema ab igne _ that appears to be more heat related than Livedo.... but heck, I'm not a doctor so it's all just guess work. It is associated with chronic exposure to infrared radiation or low levels of heat.
It sounds as if it's related to your exposure to the sun. Maybe you're all just really sensitive to UV radiation from the sun??
Are any of you anaemic? The skin in your photos looks very translucent. I remember seeing others you posted on another thread and skin looked translucent and pale there too.
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It's funny that you mention translucent skin. I am sure that my skin has become translucent through out the course of this neuropathy. It is disturbing.
I thought the kids skin was looking a bit off as well.
I have low ferritin and copper deficiency which would account for the thinning skin. I'm trying to figure out what caused that deficiency. I am learning that some toxic exposures can complete with necessary minerals and it looks like I might be onto something.
Until this summer, none of us has ever had a photosensitive reaction. We don't burn. This is completely knew. My autonomic symptoms started just about 2 years ago, painful neuropathy started about 10 months ago and the rash started sometime in June. My kids started all this month.
If my 12 year old wasn't having neurological symptoms, I would think maybe the kids and I happened to have 2 separate issues going on, but she is having so many similar symptoms, so I can't help but think this is connected.