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Old 07-31-2015, 11:33 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
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Quote:
Originally Posted by glenntaj View Post
--it's been reproduced in a number of places and is probably the best guide, but yes, your result is the most inspecific of the possibilities.

Moreover, it's quite possible that the result in currently influenced by the recent surgery and medical events, and might be different down the road. So I don't know how useful it is for diagnostic purposed right now. And I assume there are no other signs of lymphoproliferative disorders/blood cancers at this point and that you've had enough complete blood counts or even a peripheral blood smear to rule those out, although it's possible there is still an infection ongoing . . .

Wish I could be more helpful, but there's not a lot to go on there--maybe other more specific testing would be more helpful, if they'll do them in London. Look through the Lizajane charts and see what you have and haven't had done:

www.lizajane.org
Thanks - I'm fairly sure that I had no infection going on in January when my neuro tests were done. I was flaring and my ESR was high in the 70s and my body was full of stiffness so I'm not thinking that this would change or be that vague in my case.

The catalogue of infections started in February. It is accepted that I have a systemic autoimmune disease but they just can't decide on which one. Thanks for the link. I might pay to get to look at my own medical records soon too and then i can tick tests abc results off the list.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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