Hi Supernova:

You are going through hell with all your symptoms, pain, etc. I bet you are as confused as hell, and now you might even have PN. Oh brother.

I can only tell you what helped my husband Alan. Five years ago he was in so much pain due to his PN that they put him on the Fentanyl Pain Patch. He actually went up to 125 of the patch, and many cancer sufferers go to 100. Just imagine, He was on 125 of the fentanyl. My girlfriend Elaine, who has stage 3 lung cancer is on a 25 patch. Just goes to show you how horrible some PN pain can be, right?

Well, one day, a few years ago, I was looking at these forums and I happened upon a doctor called a chiropractic/neurologist. There are not that many world wide. It's a special field. It's chiropractic and the doctor take 3 years of neurology. So he knows all about nerves and things that a neuro would know, but he also knows THE WHOLE BODY. And how it should be funcitoning.

Well, you should see my husband today. He went in there weighing 275 lbs, all stiff like a board, (he never exercised), he couldn't bend in any direction, his PN was horrible. The first exam is over 3 hours. The guys runs every test in the book on you. Then Alan went (at first) 3 times a week. His doctor used a device known as a G5 machine. Alan says if he could buy one tomorrow and have it in the house, he would, that's how good it makes him feel.

Alan then went from 3 times a week, to once a week, and over the years, he goes maybe once every 2 months. He owes this particular doctor his life. That's how we look at it.

Oh, and soon after he went to the chiropractic/neurologist, he was able to wean himself off the fentanyl patch. You have to do it in stages BUT HE DID IT. Now I'm not sure where you live, but just google chiropractic/neurologist in your area and hopefully you can find one. I don't know if he/she will accept your insurance. But let me tell you one thing, this is the best thing that Alan could have ever done.

He is presently taking IVIG therapy. But he doesn't use any pain meds.

And the best thing is that after going to the chiropractic/neurologist, he lost 75 lbs, and joined a gym. Excercise really helps (that is if you are able to do this). But first you have to find the right doctor.

Now since everybody you have seen is not doing you any good whatsoever, you really have nothing to lose. Why not give it a try. If they can help you, isn't it worth looking into??

Let us know how you do, okay?

Melody