Oral may be an option however it does have some side effects. The nice thing about the infusions for me is that the side effects are confined to a couple of days and then it is completely washed out.

Quick question on meds. You had mentioned amitriptyline. Does it and related metabolites lower seizure threshold? I seem to vaguely remember something about that....

My gosh, I hope I did not disturb you too much! I have a hard time believing the pain changes are permanent. chronic pain doesn't kick in till over 6 months and often longer depending on the situation. The fact that her headache is decreasing means that stimulus is already shrinking and her brain will note that change. I really feel the body has a tremendous capacity for healing. Your daughter has obviously been through a lot but kids that age can overcome things adults never could. She is growing and her brain is changing daily if not hourly. I have learned through my own experience of severe nerve injury and repair surgery that re-wiring can occur. It takes time and diligent effort but at the very least you can minimize loss through consistent attention to care and healing.

I will keep your family in my prayers and hope restoration and comfort is brought to your daughter soon.