Here is my progression story:

I had suffered from having lots of pain in my right leg from what was thought to be a sports injury (I'm not so sure anymore). My symptoms started abruptly in Feb 2014. I started to not feel very well for a few months before that (looking back, I already had neuropathic pain in my groin). Right before this phase started, I got extremely cold. I was colder than I'd ever imagined a human could be. My fingertips started turning purple as well. The pain in my leg and my foot increased.

In mid-Feb that year, it started strong with the feeling that I was being electrocuted. I had a big "bolt of lightening" travel down the length of my right leg. Then it felt like someone tied a rope around my right ankle and was trying to cut off my foot. Things just got so intense from there that I felt crazy.

Then came the hot, wet, warm sensations that traveled up my right leg and spread to my whole body. It went on from there - pelvis squeezing, terrible pain, fatigue, feelings of numbness, twitching, ear ringing, pins and needles. I couldn't seem to get enough oxygen. I even had hot sensations in my left ear canal and the ground seemed unstable when I walked because I was developing a balance disorder.

Then the burning and the abnormal sensations got out of control. It culminated in a trip to the ER (Apr 2014) due to a bed of nails sensation from behind my eye, down through my mouth and throat to my spine. I don't think I really had the proper vocabulary to describe what was going on inside my body. My body also started to get itchy right around this time.

Then came the delayed burning. I'd get my haircut and would wake up the next morning with burning on the back of my head. The burning was all over my body at any given time - face, head, left eye, neck, mouth, back, arms, butt, and even my labia too. The burning on my legs and feet is less than other parts, but they burn too.

The burning was terrible for several months. The pain in my arms was increasing. My face and arms would have a sandpapered feeling when I woke up each morning. When I saw the neuros in Dec 2014, they found that I had no true numbness when they did the needling test around my body parts. I have temperature loss part way up my arms and I can't feel the needle sticks as intensely by my wrists.

Right now, I'm pretty much left with lots of burning all over my body, a vestibular disorder that the ENTs can't figure out, bee sting sensations from my neck down to my butt, and face pain that mimics trigeminal neuralgia, but is likely due to SFN. And a negative punch biopsy because they couldn't take one from my arm....because they only do legs!!!!! UGH!!!!!!!!!!!!!!!!!!!