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Old 08-04-2015, 05:32 PM
rempatterson rempatterson is offline
Junior Member
 
Join Date: Mar 2010
Location: New Jersey
Posts: 28
10 yr Member
rempatterson rempatterson is offline
Junior Member
 
Join Date: Mar 2010
Location: New Jersey
Posts: 28
10 yr Member
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I'd like to respond, as I had PD symptoms for over three years that I had been taking to licensed neurologists and other licensed medical professionals without the proper result. It took my going to another information source, also an MD but one at Columbia U to get my diagnosis. That was oover five year ago. While my c/l therapy and MAOBinhibitor therapy have helped, I think I also made the right decision not to limit myself to the prescribed therapies but to also develop my own exercise program. It has involved stationary cycling and although a tremor has developed in my right arm during the five plus years I have been exercising my legs, I have not noticed any progression in my legs.

We PWPs need to be rational consumers of therapies. This means using medical professionals but also exercising a kind of management control over them. We need to use common sense, get peer reviews, and study.



Quote:
Originally Posted by soccertese View Post
just wondering what your reasoning is to spend a lot of money on an alternative treatment, having to seek non-expert advice on a message board when you have a problem, rather than use cheap, highly effective carbidopa/levodopa and consult with a pd specialist? are you involved with pd support groups where you can see how well/poorly pd'ers are doing on conventional meds? this is none of my business so don't feel compelled to respond.
...

Dr. Eric Ahlskog

Peterborough Conference, October 2012

http://www.cno.parkinson.ca/site/c.j...sons_Video.htm
parkinson's society central and northern arizpna

old timer, written at least 2 books on pd, initially talks about pd in general and history of L-DOPA, gets to the meat and potatoes around 17minutes into video.
also discusses agonists and azilect.


major point made is people who are undermedicated progress faster than those that aren't, implication is undermedicated people don't exercise enough.

interesting discussion of constipation in q&a, no magic bullet but makes suggestions at start of Q&A

just want to help.
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