Member
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
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Member
Join Date: May 2009
Location: Pennsylvania
Posts: 221
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Thank you everyone for your comments BioBased I will look into the LDN product.
I will look more on the forum of other with problems with bones thinning.
My doctors before they do surgery want to find out what else could be causing it at the moment Iam looking at 5 surgeries 2 for the hips, shoulders, and putting a rod in my femur. My ankle already collapsed and that was repaired but they don't want to do any surgeries until they know if there is another cause because if there is and they did surgery not knowing it could be for nothing if they fix it and then bone under that dies too. I was told to find a hematologist but yet haven't found one that deals with bone issues, so Iam going to see if my rheumatologist could do all the tests that the other specialist would do to find the disease in blood that causes no blood flow to the bones. For some reason my left side is breaking down faster then the right which they cant explain as I am right sided and would think using that side would make it go faster. The surgeries are going to be tough but my RSD doctor has already gotten me through 5 other surgeries doing anything to keep me out of pain ketamine is always the must and then either block, epidurals, even ketamine comas if needed along with my main pain meds just given higher dose and more often. Iam thankful for him cause without him my bones would be dieing and I would have options for surgery with not having someone to help with the pain.
I just though I would ask the question of RSD causing blood flow issues to the bones as I know it does it to the skin and limbs like in the thermograph you can see where the blood flow is weak making them cold, so just wondered if it could go as far as the bones. Once we could figure out if there is another cause to my bones then we can work on starting surgery after surgery, starting with the hips.
Thank you again everyone all the help I can get to figure this out sure helps
Sam
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