Waterwillow, I don't know what the law is in the UK as far as medical records go, but as JJ said, you need to see the results. Sometimes doctors don't tell us everything.

Didn't they even offer you some Mestinon?

I hope you can see a pulmonologist. You really need thorough breathing tests because your breathing sounds scary. Do you know what your oxygen saturation (O2) is? They should probably do a test to monitor and record your O2 at night while you're sleeping.

People on a CPAP or BiPAP need to be evaluated periodically!

Please try to get your B12 and D checked. And be tested for celiac disease, too. Those conditions are so common. You could have MG AND those issues.

I have a hard time with the way some patients are treated in the UK. It's not thorough or sufficient. And if you have positive MG antibodies, then that doctor could be in legal trouble for not treating you!

I hope you can get the care that you deserve!


Annie