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Old 06-22-2007, 05:48 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
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I have a very straightforward list posted on www.lizajane.org, where I made all the charts for the diagnosis of neuropathy. Please take a look.

I've put my own genetic testing on the site, so you can look at what a personal chart of your testing might show:



http://www.lizajane.org/PN/Users/liz...y%20workup.xls

If you compare the page for genetic tests with my personal chart, you will see that I've had all the genetic tests which apply to me, a person with a sensory axonal neuropathy. I did not, for instance, get testing for motor neuropathies. I think this is a user friendly tool, and many of us bring these charts to their doctors and request tests on them. No one has yet been told NO, and most doctors have been pleased with this.

I have ALL my labs on charts, as I get lots of blood tests for various reasons, and my doctors always are pleased to have me walk in with the latest results from another doctor.

Here's what I bring my docs; remember, I'm able to do this ONLY because I ask every doctor to give me a copy of my labs before I leave, or fax me a copy if they receive them when I'm home.

http://www.lizajane.org/PN/Users/liz...e%209,2007.xls

I hope this helps.

Please be sure to look at this last chart, and check out all pages, and scroll from total left to right. This shows just how much can be in one file and cover your entire life's worth of dealing with health.
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LizaJane


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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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