Hi Sandy, welcome to the forum. Unfortunately, I don't really have an answer to your question. I've only had the SFN for about a year, and haven't progressed as far as you. I'm only on Gabapentin and various supplements at this time. It's been a roller coaster ride. Just last week I posted about how things were getting better for me - then this week they turned bad again in a hurry. (I guess I jinxed myself - I'm not planning on sharing any good news in the future. ) Hopefully, someone else can add some better info for you.