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Originally Posted by NoseHurts
Hi Dave!!!! Thank you for writing. I understand the pins and needles feeling at the nose and that is the only, thankfully, annoying thing about this disease so far. There are other areas that hurt but only if I press on them. Do you have the facial pain or annoying feelings on one side or both of your face? The Gabapetin I am taking has worked some but not so much around my nose where the nerve ending is. I have to look up Paresthesia to see what that is. Does your nose really burn when you are in a really air conditioned room or out in the cold wind? The hotter days we have had also gets the pin and needle feeling going.
Just came home from my 3 month follow-up for my Multiple Myeloma and had a good report and go back in 3 more months.
Hope you are having a good day Dave and thanks again for writing.
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Hi NoseHurts,
First of all, that is great news about your Myeloma. I am now 21 months clear of Colorectal Cancer, dxed in '13. I now have checks every 4 months.
It is nice to meet someone else with a screwed-up nose, Neurologically speaking. My problems are left-sided due to an arterial knot around my Trigeminal Nerve. Yes the cold air aggravates it terribly, makes the pins and needles more extreme. I want to grab it and writhe it around, maybe rub a sander over it. Particularly cold temps also set off my TN.
I also get affected by high temperatures. I have Neurological Hypersensitivity, so this starts burning more over about 70℉, and my nose follows suit.
Unfortunately, people look at you as if you are crazy when you complain about your nose. But tickle a sleeper there with a feather, or even a hair, and see the reaction.
I have Lidocaine Infusions for my Neurological Pain and take Topiramate for Cluster Headaches. Combined, these do reduce the intensity somewhat, but not enough.
Dave.