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Originally Posted by Healthgirl
Thanks, This is so miserable. I can't even breathe or swallow food with out horrific nerve pain. It has spread back into my shoulders and I am so upset.
I can't figure out what the trigger was. No stress, was very happy and optimistic, no fever, no infection....
I though it was easing last night, but it was a probably because I was steady with the meds. Today is even worse. I can't even tolerate any noise with out it causing vibrational nerve pain in my whole upper body. My legs are getting floppy again and my hips hurt. So so sad. 
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Stay strong. Just be reassured that this is common in everything I have read. There are even some places that say it may be a sign of healing. My neurologist said a sudden increase in pain can be a sign of healing. He made no guarantees of course but said he wouldn't rule it out. Try to remain hopeful, I know it is awful.