Quote:
Originally Posted by Patrick Winter
I have found that the supplements can be helpful at at least reducing the pain level. Most notably R-Lipoic, B-12 and ALCAR. R-Lipoic must be taken in a fasting state. I personally take 300mgs of R-Lipoic a day and have pretty good response. There are also clinical trials that show it may actually help heal the nerves. I also have found that you just have to simply avoid white carbs, sugar and pretty much anything that spikes blood sugar because it will stimulate the nerves and you don't want that. i have lost 50 pounds as a result in the past 8 months. I actually have gotten a bit too thin for my liking but I have had all blood work done and doctors are saying stay with whatever i am doing. I still take a 300mg gabapentin at night becuase by 9 or 10 PM the burning starts to kick in. I would prefer to not be taking it though, hope i can get there at some point.
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I read these forums daily, but rarely post. I really appreciate the feedback. As I said, I'm getting desperate.
Regretfully, I tried antidepressants for about a year. They helped (very) slightly (in that I slept better), but on the other hand I just sat around all day and didn't care about doing anything all at. So I stopped them.
Several years ago, I did the no sugar, supplements, lost 30 lbs, etc. and after 9 months, I felt worse, so I stopped that too. None of my labs showed any improvement either.
I have resigned myself to the fact that I'll never be able to do anything again. What ever I have to do to get through the day I do, even if it means staying in bed for several days in a row.
Just chimed in here in hopes of something new for the pain.
(Wish people would try to understand how this disease works, instead of my having to explain myself at every turn.)
Thanks